Please note: Posts on this site may contain affiliate links. For more information, please read my full disclosure statement.

You may find this post linked up with my awesome blogging friends at these Blog Parties. I hope you'll check out their blogs!

Tuesday, June 4, 2013

Facing Reality Head-on

When I began this blog in January 2013 it was a very emotional time for me. Facing reality head-on was not at all what I was ready to do. I was 7 months into what I described as "a less than desirable circumstance". Here are my exact words...

"Even now as I enter 2013 facing the unknown in a less than desirable circumstance, God is teaching me to trust in Him as He gives me the grace to walk through this."

Dealing with Asperger's Syndrome

Last June our son Caleb began experiencing severe anxieties which led us to seek Christian counseling for him. I won't go into the specifics of the anxieties, but I will say they were severe enough that they interfered with his daily life. The Christian counselor was wonderful and helped Caleb through his anxieties through a couple of different exercises we worked on together during the weeks at home. He also suggested testing for Asperger's Syndrome which the psychologist in the group administered. The results confirmed Asperger's Syndrome, OCD, and ADD. These diagnosis' were quite a shock and at the same time somewhat of a relief because my husband and I finally knew what we were dealing with.

We tried medication for the ADD, but Caleb had a negative reaction to it in December. We were at the beach for Christmas and toward the end of our trip Caleb began having trouble remembering things he had recently done. This was very frightening! I called our pediatrician as we headed home and told her what was happening. She told us to come by the office to get the medication in dosages to wean Caleb off of it which we did. We were seen in the office the next day and the pediatrician ordered an EEG and MRI with a child neurologist. The EEG wasn't so bad for Caleb and the results were good - no signs of seizures. Caleb had to be put to sleep for the MRI. This was hard for me as a mother. I was so scared for Caleb, but he was so very brave as they put the IV in him not only once, but TWICE because the first time on one arm didn't do like it was supposed to (forgive me, I don't know the terminology.) so they had to go in on the other arm. I cannot tell you how proud I was of him - he didn't cry at all! The results came back showing only a fluid-filled cyst that the child neurologist said had been there since birth.

We have continued taking Caleb to see the Christian counselor. There have been flare-ups with the OCD throughout this past year. These are hard times for us, but together with God's help we make it through each one. We pray through these flare-ups as I have come to call them and reassure Caleb as much as possible to ease whatever anxiety it is that he is struggling with. My husband and I have chosen not to use medication for the OCD. I am teaching Caleb scripture verses to help him during these times of flare-up such as "God has not given us a spirit of fear, but of power, and of love, and of a sound mind" (2 Timothy 1:7) and "Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding will guard your hearts and minds in Christ Jesus." (Philippians 4:6-7) Thankfully Caleb has been several months free of a flare-up. I believe in the power of prayer!

As for the Asperger's Syndrome, I don't really know enough at this time to talk a lot about it. I am trying to learn all I can about it so I can help Caleb. What I do know so far is Asperger's Syndrome is on the autism spectrum and that kids and adults with AS have difficulties with socialization such as reading and reacting to nonverbal social cues and how to participate in conversations. I am currently reading "School Success for Kids with Asperger's Syndrome" by Stephan M. Silverman, Ph.D. and Rich Weinfeld. I've joined a couple of Facebook groups as well for parents of children with special needs and a Yahoo Group for parents of children with Asperger's Syndrome.

I've always suspected ADD in Caleb. My husband and I have chosen not to use medication for this diagnosis since Caleb had the bad experience with it. We are trying to go organic, gluten-free, etc. with our food instead and learn other methods for dealing with the ADD.

June 2012 was the month it all began. I can't believe we are already a year into this journey! I have experienced many grace-filled-moments during this time and now it is time to face this reality head-on and speak to others about it. Hopefully in sharing my story, I will not only give hope to others who may be facing their own difficult realities of life, but someone with more knowledge about this than me will come alongside me to offer hope and encouragement. It has been hard for me honestly. I'm one who likes to feel like she is in control, but I'm not with this; I'm utterly dependent on God for His help and guidance in how to parent Caleb through these diagnosis'. I'm so thankful to have my husband who holds me up in my moments of weakness. I'm thankful to God for His grace that has been my strength through this entire time, and it's only because of His grace that I'm now facing reality head-on.

I've shed many tears over Caleb in this last year. I'm ready now to dig in deep to research and learn all I can for the sake of Caleb. He is my joy, so innocent and loving, and I thank God that He chose me to be Caleb's mother.

Walking in His Grace,



  1. I have tears Laurie! This touches my heart SO deeply both for me and my experience and to see my dear friend opening her heart. I have 3 that were diagnosed ADHD and the oldest was diagnosed with Mood Disorder NOS {just shy of BiPolar in her case} and they were testing for Asperger's. I myself was diagnosed BiPolar. I say that simply to tell you this: My family has been medication free for almost two years now. I never really did the counseling thing because of insurance, but the kids are now 3 months free of counseling. I'm, of course, not saying these are bad things. I just was to affirm for you, that prayer really does work...even in this! Keep pushing mama! You are doing awesome!~


  2. Thank you! This post has been stirring in my heart for a while. Thankful that God gave me the strength to release it. I feel like now I can move on with my blog and let the Lord continue to lead me in it.

    Yes, Rose, I am a firm believer in the power of prayer. Several years ago, an evangelist who preaches yearly at our church shared with us the power of praying God's Word back to Him. That is how I pray now and that is why scripture memorization is so important to me and why I feel it is important for my son (as well as my daughter). Thank you for sharing with me (praise God for how He has moved in your situation!) and for your encouraging words!


  3. My dear sweet Laurie, ((hugs)), thank you for sharing your pearls with us, they are precious! I heard your mother's heart. May the Lord continue to bless your family, and show favor upon you. May the Lord heal your Caleb.

    The scriptures and prayer are a wonderful way to deal with and you are doing the right thing. May I suggest one more thing, have the Psalms playing as he goes to sleep,very softly on the background.
    The book of Psalms, has been used for thousands of years for in healing the sick. "For the word of God is alive and active. Sharper than any double-edged sword, it penetrates even to dividing soul and spirit, joints and marrow; it judges the thoughts and attitudes of the heart. Hebrews 4:12:

    We as a family have gone to sleep for years with the scriptures playing as we go to sleep; at first it took a little time to adjust, but now, we have a hard time going to sleep without. It's wonderful!

  4. I love the idea of playing the Psalms Katia! Thank you so much for sharing your suggestion and your words of encouragement. Your sweet friendship warms my heart and I'm so thankful to God for bringing our paths together.

    Your sister in Christ,

  5. That was just beautiful..I'm sorry it took me so long to read it.. I don't get many quiet moments to myself!! I loved it though and I LOVE katia's idea of playing Psalms.. I might do that myself.. couldn't hurt.. maybe I might memorize some of it!
    Looking forward to more of your journey Laurie!!